Title graphic Developmental Disabilities Hospice & Palliative Care

Welcome to Developmental Disabilities Hospice & Palliative Care Discussion Forum & Resource Center

This forum was developed as a collaborative initiative by NYSARC Inc and The Hospice and Palliative Care Association of New York State with funding provided by the NYS Developmental Disabilities Planning Council.

We believe that every person who cares for, or advocates for persons with developmental disabilities has knowledge, ideas and experiences to share, and that together this can be a thriving community with ideas to improve end-of-life and supportive care for persons with developmental disabilitites and those who are close to them.


The forum was developed in response to a series of training workshops that were organized across New York State to bring together Developmental Disabilities, Hospice and Palliative Care providers and advocates who have an interest in improving end-of-life and supportive care for persons with developmental disabilities, as well as their families and their staff caregivers.

~~ The goal is to improve end-of-life care for persons with developmental disabilities through greater utilization of hospice and palliative care services.

~~ The forum was developed to provide a safe and accessible platform that would encourage a learning dialog to take place between the develpmental disabilities and the hopsoce/palliative care service provider communitites and advocates.

~~The forum features a professionally facilitiated discussion board where registered members are able to post questions and concerns and then recieve answers from experts and/or their peers.

~~ Forum members recieve quarterly E-Newsletters that provide up to date news, policy information and advocacy opportunities as well as educations resources, practical materials and a current events calendar centering on Hospice, Palliative care and Developmental Disablities issues.


Would you like to join the discussion or access our resources?

Not yet a member? Joining is easy!

To register for the forum and receive a complementary subscription to our E-Newsletter, please CLICK HERE.


    Logon today and you can review previous topics in the list below ~ just go to 'Forum Home' where you will find the previous discussion threads. Here you will also find useful resources gathered during the course of these discussions and the research for the quarterly newsletter.

  • Successful Team Building Between Hospice and Developmental Disabilities Services Staff!
  • Legal Issues of Providing Hospice Care to People with Intellectual and other Developmental Disabilities
  • Funding and Billing Issues for Hospice Care
  • Pain Identification and Management for People with Intellectual and Other Developmental Disabilities
  • Use the following links to find additional information on hospice and palliative care and on additional educational opportunities offered by NYSARC Inc and the Hospice and Palliative Care Association of New York State

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